Mental Health and IBD

Mental Health Issues from IBD

Day 6 of Crohn’s and Colitis Awareness week I thought I would briefly touch on some mental health issues that arose from having Inflammatory Bowel Disease. Let’s face it any long term or chronic illness can get you down and affect your mood greatly; it is widely known that low mood can accentuate pain and vice versa it is definitely a vicious circle. Mental health can be a bit tricky at the best of times but throw in something like chronic illness and your mental health can take a nosedive pretty quickly. Read more

A Parent’s Memory of IBD

A Parents Memory of IBD

For day 5 of Crohn’s and Colitis awareness week I asked my mam if she would write a little bit on what it was like for her being a parent of a child with IBD. I wanted people who are also parents of children with IBD to know they aren’t alone and those of us who are the child to have an insight what it was like for our parents.  At first she found it really hard as so much of it made her angry and upset thinking about it, she seems to focus on my stay in Leeds General Infirmary which was probably when I was at my worst and surgery was first mentioned which I declined – funny how you remember things once you read someone else’s account! She remembers things differently to me and considering I not only blocked most of it out but I was on a lot of pain medication so it’s hazy anyway it isn’t surprising. Read more

Dating with IBD

Dating with IBD

Due to DBT and work day four of my Crohn’s and Colitis awareness week post is again backdated! Hopefully you all understand! Today’s post is all about how I found dating with Ulcerative Colitis; baring in mind that from the age of 10 I got poorly and by the time I started dating or being interested in boys I had had my diagnosis for 4 years which meant if people didn’t like it, it was tough shit hahaha pun totally intended! Also I do apologise for the swear to any younger people that maybe reading this post. Read more

Working whilst Chronically Sick

Working Whilst Chronically Sick

Day three of Crohn’s and Colitis week is about how I went about getting a job and trying to keep it after my diagnosis of Ulcerative Colitis. If you have’t read about what it was like for me getting a diagnosis please click here. Let’s face the truth here is by the time I was 16 and had a job I didn’t really know any different as to how my life should have been without Ulcerative Colitis so I just had to get on with it because it was now how my life would be. So the next chapter in my life was coming to grips with working whilst being chronically sick. Read more

Diagnosis of Ulcerative Colitis

Diagnosis of Ulcerative Colitis

Day two of Crohn’s and Colitis awareness week (again backdated!) this post is all about what it was like when I was diagnosed with Ulcerative Colitis and how they diagnosed it. To find out what it was like before my diagnosis please click here. Again this is something I have blocked a lot of it out as it wasn’t a particularly nice time or situation to experience. I felt like a long time to my diagnosis but after diagnosis it felt much longer trying to get into some form of remission. Read more

Before Diagnosis

Before Diagnosis

So as I write this it is actually day three of Crohn’s and Colitis awareness week but I have back dated it to show it was published on the first of December; there is a good reason for this and it is because writing about my pre diagnosis is hard. Hard for two reasons :

  1. I have blocked a hell of my preteen and teen years out
  2. I get anxiety attacks when I think back to it

They are the reasons behind why I haven’t really got anything on my blog about before my surgeries so I am using the fact it is an awareness week to do a blog post a day (even though two will be backdated) about what it was like for me living with Ulcerative Colitis. Read more

Nuclear Medicine – Bone Scan

On Monday I had to go to nuclear medicine for an isotope bone scan which I was referred to from my rheumatologist to get some further information on how my joints are doing with regards to my hypermobility. We had done knee and hip x-rays which didn’t show any damage which is a good thing as he told me once something shows on an x-ray with regards to your bones at least it is either irreparable or it will take a long time to heal. So the next step was to scan my skeleton; part of me felt apprehensive as I wasn’t really sure what to expect so here is a short post on what goes down and hopefully will alleviate anyone else’s anxiety. Nuclear medicine is a department that uses low levels of radiation to scan your bones, heart, kidneys, lungs (I have had my lungs done before) brain and thyroid gland.  Read more

Mooncup – Menstrual Cup

Mooncup - Menstrual Cup

I have been trialling the Mooncup for three months as recommended by Mooncup themselves to fully be able to appreciate the product. Now some of this has got to be with not having to run to the shops to buy sanitary products but also the money you will save oh and the planet since you aren’t dumping more waste into landfills. Read more

It Can’t Always Be Scar Tissue

It can't always be scar tissue

How often do you hear from doctors or the like that the pain you are experiencing is probably adhesion’s/scar tissue? There is a high chance that a lot of pain we experience is from scar tissue but I have grown accustomed to that pain and definitely can tell when something else is afoot for instance when I get pain high up and my output slows down when there has been no change to my diet! This happened last week which you may have seen on my social media I went to hospital for; well this post is all about that admission. Read more

Operation Live – Bowel Surgery

Operation Live - Bowel Surgery

Now it should be pretty obvious to any newcomer that I have had bowel surgery but not once but twice. I don’t actually watch much TV unless it is crime drama or true crime (Making a Murderer anyone?) I saw a lot of people talk about Operation Live and it being about bowel surgery. So the next day I went hunting on catch up for it as I was intrigued – especially since I have had my bowel operated on; although I firstly had a pan procolectomy to remove my large bowel and have a Jpouch formed out of my small bowel, then 8 years later I have the Jpouch removed and a permanent ileostomy formed. So as I watched it as any old school swot would do I wrote notes! This post is essentially those annotations fleshed out (I know I am hanging my head in shame too) to make a bit more sense of my reactions and thoughts. Read more