I have a heck of a lot of respect and love for the Purple Wings Charity. I genuinely don’t believe I would be in the position I am now if it wasn’t for a message about the ball I saw in a group. The conference is where I was able to make contacts who became friends such as Jasmine and Nozar, let alone Lauren and meeting a ton of friendly and amazing ostomates which you can read about the conference and the ball in those links. Read more
Well then this is a rather exciting topic for me to be talking about! Myself and three for now other women (one sneaky one is hiding in the wings but for now will remain a surprise) will be taking to your screens once a week to talk about life with IBD and ostomies! In our very own SHOW! So even if you don’t have IBD but you have a stoma you are still included! Read more
Here is part two of the by ostomates for ostomates Orientation extended! Please check out stomalicious blog and or Instagram (where the craziness started) please check out part one here. Also be warned there is images of prolapsed stomas other ostomates have suffered.
Today I had an appointment with General Surgery (General Surgery *salute* to all you HIMYM fans out there) I thought I would be seeing my surgeon but nope I saw the Stoma nurse which was fine because that’s who I wanted to see anyway! I needed some more barrier rings and my peristomal skin is quite sore again. *Naked Stoma* straight off the bat in the post!
So I went to empty my bag and noticed it looked sore around the stoma. I always have a quick look through the flap. This time I noticed a different area had been a bit red and sore. I figured I would just change the bag and have a proper look. *Naked stoma photo* Read more
So after years of having an awful relationship with food, I get very stroppy about not being able to eat what I want (most of the time swayed by TV! Damn my weak constitution) When my Ulcerative Colitis first started to flare up I was full swing with an eating disorder. Most people say oh that’s what triggered it. I still get immensely annoyed at this comment because it’s a genetic disease, I was destined to have the bloody thing. Read more
Hi I’m Stephie and I’m scared to drink fluids incase it makes my stoma output watery. That’s what I would be saying if I was in a stoma support group that was you know like AA or something of the like. And with this newfound phobia I have caused myself to become dehydrated, this obviously isn’t good on soooo many levels. On the plus side I have an appetite now! *naked stoma photo below* Read more
So today was not an entirely good day. I am pretty sure that it won’t all be like this especially once I don’t have a drainage tube and I’ve got to remember tomorrow is a new day. Silver linings and all that. *naked stoma in this post* Read more