I have a heck of a lot of respect and love for the Purple Wings Charity. I genuinely don’t believe I would be in the position I am now if it wasn’t for a message about the ball I saw in a group. The conference is where I was able to make contacts who became friends such as Jasmine and Nozar, let alone Lauren and meeting a ton of friendly and amazing ostomates which you can read about the conference and the ball in those links. Read more
Well then this is a rather exciting topic for me to be talking about! Myself and three for now other women (one sneaky one is hiding in the wings but for now will remain a surprise) will be taking to your screens once a week to talk about life with IBD and ostomies! In our very own SHOW! So even if you don’t have IBD but you have a stoma you are still included! Read more
Today I had an appointment with General Surgery (General Surgery *salute* to all you HIMYM fans out there) I thought I would be seeing my surgeon but nope I saw the Stoma nurse which was fine because that’s who I wanted to see anyway! I needed some more barrier rings and my peristomal skin is quite sore again. *Naked Stoma* straight off the bat in the post!
So I went to empty my bag and noticed it looked sore around the stoma. I always have a quick look through the flap. This time I noticed a different area had been a bit red and sore. I figured I would just change the bag and have a proper look. *Naked stoma photo* Read more
So after years of having an awful relationship with food, I get very stroppy about not being able to eat what I want (most of the time swayed by TV! Damn my weak constitution) When my Ulcerative Colitis first started to flare up I was full swing with an eating disorder. Most people say oh that’s what triggered it. I still get immensely annoyed at this comment because it’s a genetic disease, I was destined to have the bloody thing. Read more
Hi I’m Stephie and I’m scared to drink fluids incase it makes my stoma output watery. That’s what I would be saying if I was in a stoma support group that was you know like AA or something of the like. And with this newfound phobia I have caused myself to become dehydrated, this obviously isn’t good on soooo many levels. On the plus side I have an appetite now! *naked stoma photo below* Read more
So today was not an entirely good day. I am pretty sure that it won’t all be like this especially once I don’t have a drainage tube and I’ve got to remember tomorrow is a new day. Silver linings and all that. *naked stoma in this post* Read more