Options and Preferences with Treatments – PoPSTER

TReatment options and preferences

So a couple of months ago I wrote a post based on some questions from the PoPSTER study into steroid resistant Ulcerative Colitis. Here is the next instalment on treatment types I have had and then looking at the options and preferences I was given or have. This was interesting for me as most of the treatments I was given I was classed as a child so I have the added intrigue that is hindsight added into my answers.

Read more

10 Things about Life with IBD

10 Things about Life with IBD

To commemorate World IBD Day I thought I would talk about the ten things I wish I knew and would tell other people dealing with something that ended up changing my life forever. No matter how often we tell people that the disease doesn’t control us sadly to an extent it does and feeling alone and isolated is one thing we can’t control.

Read more

Life with Steroid Resistant Ulcerative Colitis (PoPSTER)

Life with Steroid Resistant Ulcerative Colitis

So recently I was asked along with other Ulcerative Colitis warriors as we most definitely are warriors to provide an insider perspective on the PoPSTER study based out of Sheffield University. The study will be branched out further to other ulcerative colitis patients who have found their disease to be resistant to steroids. I thought it might be interesting to share the answers I wrote for the questions so I could offer more input than just looking at the questions. This is broken down into 4 main sections with subsections so it will more than likely be multiple posts.

Read more

Mental Health and IBD

Mental Health Issues from IBD

Day 6 of Crohn’s and Colitis Awareness week I thought I would briefly touch on some mental health issues that arose from having Inflammatory Bowel Disease. Let’s face it any long term or chronic illness can get you down and affect your mood greatly; it is widely known that low mood can accentuate pain and vice versa it is definitely a vicious circle. Mental health can be a bit tricky at the best of times but throw in something like chronic illness and your mental health can take a nosedive pretty quickly. Read more

A Parent’s Memory of IBD

A Parents Memory of IBD

For day 5 of Crohn’s and Colitis awareness week I asked my mam if she would write a little bit on what it was like for her being a parent of a child with IBD. I wanted people who are also parents of children with IBD to know they aren’t alone and those of us who are the child to have an insight what it was like for our parents.  At first she found it really hard as so much of it made her angry and upset thinking about it, she seems to focus on my stay in Leeds General Infirmary which was probably when I was at my worst and surgery was first mentioned which I declined – funny how you remember things once you read someone else’s account! She remembers things differently to me and considering I not only blocked most of it out but I was on a lot of pain medication so it’s hazy anyway it isn’t surprising. Read more

Dating with IBD

Dating with IBD

Due to DBT and work day four of my Crohn’s and Colitis awareness week post is again backdated! Hopefully you all understand! Today’s post is all about how I found dating with Ulcerative Colitis; baring in mind that from the age of 10 I got poorly and by the time I started dating or being interested in boys I had had my diagnosis for 4 years which meant if people didn’t like it, it was tough shit hahaha pun totally intended! Also I do apologise for the swear to any younger people that maybe reading this post. Read more

Working whilst Chronically Sick

Working Whilst Chronically Sick

Day three of Crohn’s and Colitis week is about how I went about getting a job and trying to keep it after my diagnosis of Ulcerative Colitis. If you have’t read about what it was like for me getting a diagnosis please click here. Let’s face the truth here is by the time I was 16 and had a job I didn’t really know any different as to how my life should have been without Ulcerative Colitis so I just had to get on with it because it was now how my life would be. So the next chapter in my life was coming to grips with working whilst being chronically sick. Read more