Human Is Beautiful…Perfect Is Boring

Jasmine Stacey Halloween Photo Shoot

Like most young girls I dreamed of being a model when I grew up, but becoming chronically ill and being definitely awkward looking (not to mention steroid moon face) I soon realised that I wasn’t what society deemed as beautiful. Not that I was ugly really not in reality. Since meeting Jasmine back in 2016 I have wanted to model for her company but I was never going to be at the forefront of her mind when her brand exudes glamour and silver screen elegance – as I am a very proud punk rock princess! I however got to experience modelling for her recently and it didn’t matter about my tattoos as I got to be all decked out for Halloween! Read more

Recover, Adapt, Overcome

conference and ball

I have a heck of a lot of respect and love for the Purple Wings Charity. I genuinely don’t believe I would be in the position I am now if it wasn’t for a message about the ball I saw in a group. The conference is where I was able to make contacts who became friends such as Jasmine and Nozar, let alone Lauren and meeting a ton of friendly and amazing ostomates which you can read about the conference and the ball in those links. Read more

#ostoMYlove June Week Three Micro Actions Challenge

We are now into week three of our June micro action challenge; so in our camp since the start we have had babies born (my baby Button is now a baby Jacob) sickness with Louise, a hospital admission from Rachel and Natalie is holding the fort with The IBD and Ostomy Support Show Facebook page! But we are all trying to make sure we get our actions done when we can; but such as life things can be a bit of a challenge. Read more

What Is It Like To Live With Someone Who Is Chronically Sick?

living with a chronically sick person

I have literally been wanting to do this post for aaaages! But I have really had to lean on 00Steve to do this because although he is incredibly supportive of everything I do to raise Ostomy Awareness, he would rather do it in the background where he can just listen to me whinge! But I thought it might be beneficial to hear what it is like to live with someone who is chronically sick. Read more

Let Me Proudly Introduce – The IBD and Ostomy Support Show

the IBD and ostomy support show

Well then this is a rather exciting topic for me to be talking about! Myself and three for now other women (one sneaky one is hiding in the wings but for now will remain a surprise) will be taking to your screens once a week to talk about life with IBD and ostomies! In our very own SHOW! So even if you don’t have IBD but you have a stoma you are still included!  Read more

Crohns And Colitis Awareness Week

crohns and colitis awareness wek

So as most of you are all aware by now it’s like the title says it’s Crohns and Colitis Awareness Week. We’re well into day 2 now and it’s been heart warming already! The vast amount of people taking part and doing their bit no matter how small to raise awareness for the disease that we all have in common. Read more

Hi I’m Stephie And I’m Scared To Drink

dehydration

Hi I’m Stephie and I’m scared to drink fluids incase it makes my stoma output watery. That’s what I would be saying if I was in a stoma support group you know like AA or something of the like. And with this newfound phobia I have caused myself to become dehydrated, this obviously isn’t good on soooo many levels. On the plus side I have an appetite now! *naked stoma photo below* Read more

Hello Awestomy

awestomy

I’m now part of the Awestomy club (I would love to say I came up with that myself but I didn’t I found it on pinterest) and I already feel better for it. When I woke up in recovery I remember asking the staff to bleep my dad because he would either be with or get hold of 00Steve I just wanted a hug at this point. Read more